Sunday, June 28, 2009

Standing Upright


For the first time in nearly seven months, Brian is able to be in an upright position with support from a recently acquired standing frame (see photo). He has already increased his tolerance in the frame to a couple of hours per day. Perhaps, being in an upright position will assist in healing his serious pressure wound. For two months now, this troublesome wound has dominated his time and prevented him from getting into recovery therapies that would put his paralyzed limbs into motion. While healing does continue, the Wound Specialist has not yet ruled out plastic surgery should the healing process stall.

The pressure wound prevented Brian from accompanying me on my visit to Beyond Therapy, a recovery program for spinal cord injury victims located at Shepherd Hospital in Mid-town Atlanta. Brian is on a “waiting list” to enroll. Meanwhile, he is anxious to go to Race to Walk which is located near Charlotte. Trainers at both programs will collaborate. They will use state of the art equipment and vigorous exercise to improve Brian’s overall health and possibly restore some function to his paralyzed legs.

I’ve been able to open channels with some of those involved in research who are seeking a cure for paralysis. There is truly an explosion of activity involving a variety of promising approaches. The findings presented at the latest international conference of neuroscientists were so promising that researchers were gathering in the hallways at break, sketching out their plans for clinical trials.

Our plans and strategies for Brian’s healing are well in place. We just didn’t realize how prolong, troublesome, and at times even scary those issues would be. Brian knows that the recovery road will be long, but he also understands that his goals for acquiring more function can be obtained. Only GOD knows when and to what degree. With faith, Brian, his family and supporters will stay the course.

On behalf of our family, I extend special thanks to those who are donating to Brian’s recovery fund, keeping his recovery efforts (e.g., acquisition of standing frame) on track while our family presses on with the rehabilitation and medical treatments that are necessary and vital. Some of you have given of your time and energy assisting us in helpful and loving ways – looking after our 3 rescue dogs; cutting the grass; sending phone cards; donating items for Brian’s apartment; planning fund raising events; obtaining auction items from the “Canes” (Thank you Carolina Hurricanes!).

Brian has two great friends from Cary living in Charlotte who consistently visit him. Several of you have visited him from out of town. He does so much better in the company of his friends. While it has been wise for him to stay in Charlotte for treatments, his opportunity for interaction with others is much too limited. Your visits are making a positive difference in his life.

Several images from the past several months have been etched into my mind. One of the more vivid just recently occurred at a rehab therapy session. From nearby, I watched Brian lying in a prone position on the floor; rise to his knees; elevate, while rotating his trunk; and then land into his wheel-chair in one nearly continuous motion. I pondered, how could he have possibly done that? By this time, Brian had spotted me. I didn’t wait for that slight wave of his hand, the signal that my young son began using as an eight year old at ball practice to tell Dad it was time to give him space and move on. On this occasion, the tears pooling in my eyes was more than enough to send me on my way.

Thank you each and everyone for your prayers and support.

Friday, June 5, 2009

Thank You from Brian

I apologize that it has taken me so long to add to the blog. Honestly, its been quite an adjustment dealing with the things I have to face for now. Sometimes I feel like it is a bad dream I have not woken up from.

I just wanted to thank you all for the tremendous amount of support I have received since my accident in December. I have been out of the hospital for a couple of months & continue to be pleasantly surprised with the amount of visitors, cards, & financial donations I receive.

I am working hard everyday with outpatient therapy appointments, my own trips to the hospital gym, & with the hopes to start some new recovery therapy soon. It really does continue to be a major adjustment to not be able to do many of the active things I have enjoyed for the majority of my life.

I still remain confident that with a positive attitude & the ongoing support of my friends & family that I am going to get through this challenge & even come out of it all a better person. The road to recovery is going to be a long & challenging one. The wonderful support group I am so fortunate to have in you all is so helpful in providing me the strength to continue working towards it.

Thanks again for your continued prayers, kindness & support,
Brian Keeter

Tuesday, May 26, 2009

Pressure Sore Preventing Therapy

For seven weeks now, Brian has been in treatment for a severe pressure sore which has him largely confined to bed, lying on his side & stomach--& understandably frustrated. We still do not know if he will be able to avoid plastic surgery or how much longer it will be before he can participate in recovery therapies at Race to Walk, where his paralyzed legs will be put into motion. We do know that severe pressure sores are very slow to heal & can be dangerous, so Brian must abide by the restrictions placed upon him.

Despite this, Brian’s attitude & demeanor are remarkable. I truly have my son back. He rolls with one punch after another with a quiet assurance, taking charge. The dry wit is back, often targeted on me (& I do give him plenty of material). Thankfully, he & his mom have a lot in common. Louane is able to stay steady & confident while helping him gain his independence. Her presence & demeanor are invaluable. As they always have, she & Brian make a great team.

Soon we hope to have a standing frame. The medical literature is well-documented with the health benefits that occur as a result of placing a spinal cord injury patient into a standing position on a routine basis; yet, insurance seldom helps. To some degree, so much of this seems to be common sense. Getting the body into an upright position & putting paralyzed limbs into motion all have well-documented health benefits. Dr. Wise Young of the Spinal Cord Institute at Rutgers University, neuroscientist & former principal physician to Christopher Reeve, commented on the importance of a using a standing frame. He said that the most important singular activity a paraplegic can do to keep their bodies readied for taking advantage of promising emerging therapies is to routinely get into a standing frame--& so Brian will.

Thank you for following this blog & for your continued concern & support for Brian. We will keep you posted. I also find it very encouraging receiving comments from you; thanks very much Sara Ficken for your recent note.

Kermit – Brian’s Dad

Monday, May 4, 2009

Grocery Shopping

In no way can I come close to duplicating Kara's writings in this blog. Not only did she pen Brian's initial steps on his long road towards recovery, but she's provided a testimony for our Lord & Savior, Jesus Christ.

Kara is nearing the projected date for Faye's (our granddaughter) arrival. So for the time being, I (Brian's Dad) will share with you Brian's recovery efforts. I do so believing that others seeking hope for recovery from paralysis will find this epic beneficial. My belief of at least partial cures for paralysis is not emulating from a grieving father desperate for hope. Rather, it is based upon hours & hours of research, venturing into the worlds of neuroscience & bioengineering. God willing, Brian will be successful in his recovery efforts against tough odds as will others via emerging therapies. This is a marathon, not a sprint.

First Father-Son Outing:
As Brian & I neared the entrance to Harris-Teeter, I wondered if he would cling close to me. The answer came quickly--it was as if the checkered flag had been waved. I barely caught a glimpse of him as he wheeled deep into Aisle 2. A glimpse of my reflection in a mirror offered a reasonable explanation. Was it me or Christoper Lloyd ("Back to the Future") staring back? I had dressed for my best impression of a crazed scientist or an old man recently escaped from confinement. Unkempt with much too long white hair was accented by my attempts to pass off bedroom slippers as real shoes. I much prefer sweat pants to slacks and yes, pulled well high as was the custom in the 1960s. My t-shirt read: "in the absence of horizontal thermal advection, diabactic processes determine precipitation type" - "geek speak" for will it be rain, sleet, or snow?
Okay then, I would keep my distance. However, Brian's whereabouts were easily traceable from his dropping items into our grocery basket--Fruity Pebbles, Vienna Cream Cookies, Edy's frozen lime Popsicles. As his items continued to fill the basket, the thought occurred to me--was he testing me in public? Would this crazed looking old guy tell the well-kept & nice looking young man in the wheel chair, enough already; put it back!

For our next outing, maybe a remote public park where no Fruity Pebbles are in reach would be a better venue? Maybe you all have ideas for Brian & Kermit's next outing on Brian's road into the future & on toward recovery?