Tuesday, May 26, 2009

Pressure Sore Preventing Therapy

For seven weeks now, Brian has been in treatment for a severe pressure sore which has him largely confined to bed, lying on his side & stomach--& understandably frustrated. We still do not know if he will be able to avoid plastic surgery or how much longer it will be before he can participate in recovery therapies at Race to Walk, where his paralyzed legs will be put into motion. We do know that severe pressure sores are very slow to heal & can be dangerous, so Brian must abide by the restrictions placed upon him.

Despite this, Brian’s attitude & demeanor are remarkable. I truly have my son back. He rolls with one punch after another with a quiet assurance, taking charge. The dry wit is back, often targeted on me (& I do give him plenty of material). Thankfully, he & his mom have a lot in common. Louane is able to stay steady & confident while helping him gain his independence. Her presence & demeanor are invaluable. As they always have, she & Brian make a great team.

Soon we hope to have a standing frame. The medical literature is well-documented with the health benefits that occur as a result of placing a spinal cord injury patient into a standing position on a routine basis; yet, insurance seldom helps. To some degree, so much of this seems to be common sense. Getting the body into an upright position & putting paralyzed limbs into motion all have well-documented health benefits. Dr. Wise Young of the Spinal Cord Institute at Rutgers University, neuroscientist & former principal physician to Christopher Reeve, commented on the importance of a using a standing frame. He said that the most important singular activity a paraplegic can do to keep their bodies readied for taking advantage of promising emerging therapies is to routinely get into a standing frame--& so Brian will.

Thank you for following this blog & for your continued concern & support for Brian. We will keep you posted. I also find it very encouraging receiving comments from you; thanks very much Sara Ficken for your recent note.

Kermit – Brian’s Dad

Monday, May 4, 2009

Grocery Shopping

In no way can I come close to duplicating Kara's writings in this blog. Not only did she pen Brian's initial steps on his long road towards recovery, but she's provided a testimony for our Lord & Savior, Jesus Christ.

Kara is nearing the projected date for Faye's (our granddaughter) arrival. So for the time being, I (Brian's Dad) will share with you Brian's recovery efforts. I do so believing that others seeking hope for recovery from paralysis will find this epic beneficial. My belief of at least partial cures for paralysis is not emulating from a grieving father desperate for hope. Rather, it is based upon hours & hours of research, venturing into the worlds of neuroscience & bioengineering. God willing, Brian will be successful in his recovery efforts against tough odds as will others via emerging therapies. This is a marathon, not a sprint.

First Father-Son Outing:
As Brian & I neared the entrance to Harris-Teeter, I wondered if he would cling close to me. The answer came quickly--it was as if the checkered flag had been waved. I barely caught a glimpse of him as he wheeled deep into Aisle 2. A glimpse of my reflection in a mirror offered a reasonable explanation. Was it me or Christoper Lloyd ("Back to the Future") staring back? I had dressed for my best impression of a crazed scientist or an old man recently escaped from confinement. Unkempt with much too long white hair was accented by my attempts to pass off bedroom slippers as real shoes. I much prefer sweat pants to slacks and yes, pulled well high as was the custom in the 1960s. My t-shirt read: "in the absence of horizontal thermal advection, diabactic processes determine precipitation type" - "geek speak" for will it be rain, sleet, or snow?
Okay then, I would keep my distance. However, Brian's whereabouts were easily traceable from his dropping items into our grocery basket--Fruity Pebbles, Vienna Cream Cookies, Edy's frozen lime Popsicles. As his items continued to fill the basket, the thought occurred to me--was he testing me in public? Would this crazed looking old guy tell the well-kept & nice looking young man in the wheel chair, enough already; put it back!

For our next outing, maybe a remote public park where no Fruity Pebbles are in reach would be a better venue? Maybe you all have ideas for Brian & Kermit's next outing on Brian's road into the future & on toward recovery?