February 2010, Update from Brian

I recently decided I am going to try to post updates to this blog as close to a monthly basis as possible. I am little behind with this post since I was working through some computer issues...

I am so over the cold weather that is starting to feel like will never end. I have always hated the cold but I hate to admit that for a while I wanted it to stay cold because the warm weather just made me miss things I used to do with the warm weather.

I am still here in Mooresville and working out at Race To Walk five days a week. I am pretty much here in Mooresville on my own. I have family and a few friends in Charlotte but it is about a 45 minute drive for most of them. Not having friends or family here or a car has made for some quite memorable experiences. I take public transportation to Race To Walk every day. The transportation service is through Iredell County. They are scheduled to get me to Race To Walk at 11 am and pick me up at 5 pm. Apparently this means they can pick me up as early as 10 am and I have been picked up as late as 6:30 pm or not at all (and I live maybe 1.5 miles from Race To Walk).

I have had several interesting conversations with the Transportation Supervisor and have gotten a decent handle on the inconsistency but it has been a little frustrating at times. As annoying as it can be I am lucky to have it. It usually gets me where I need to be (Race To Walk) and it costs me $1 each way. Since I am doing my best to conserve funds for recovery, I do not know what I would do without it.

Since I use this about every day, I have gotten to know several of the drivers pretty well. Since I am usually the only passenger on the van, I talk with the drivers quite a bit. I remember the first day I used the service and how I got into a conversation with the driver about my accident and what I was doing at Race to Walk and how I never thought I would be living in Iredell County and riding public transportation. When I unloaded from the van the driver asked me how my first ride was and I jokingly responded that I felt like I was riding the short bus to school. Oops-- she quickly said, “You shouldn’t say that, my son is deaf and autistic and he rides one to school.” I felt bad (another lesson learned) but she wasn’t mad at me and has become my favorite driver.

I mentioned in my last post how slow physical progress is and how patient you have to make yourself be or I think you would just set yourself up for disappointment and drive yourself crazy. I can say that over the last few weeks I have actually noticed some improvements. My balance, due to increased core strength, has gotten better. I was in bed for so long that sadly even sitting up straight had become challenging. Most recently I can feel my glut/butt muscles starting to fire, which will be a pretty big deal if I can get them a lot stronger. I think back to being in the hospital and not being able to feel below my belly button and now I seem to maybe be on the verge of getting my glut muscles back.

It makes me feel good to see this progress and makes me remain thankful to everyone who has helped me have the opportunity to even be able to go after these gains, especially considering how these are entirely out of pocket treatments not covered by insurance (but that's another post for another day). It costs about $1600 a month to go after gains such as these, which is a lot of money, so I am encouraged that the investment seems to be showing some signs of payoff. I know I cannot do this forever but I hope to give it about as much of a shot as anyone can.

I know many of you have heard me or others talk about my plans to attend therapy programs at The Shepherd Center in Atlanta and I still may end up going but it looks like things are shaping up to have me attend a program in Baltimore, Maryland--Kennedy Krieger Institute, affiliated with Johns Hopkins University. I may be there as early as April. I should have more concrete details and info to pass along in my next post about what's next.

Until then, I will continue to work hard at Race To Walk and explore what options are available to me on all aspects of my recovery.

Again, I have to say that without each and everyone of your help, I wouldn't even be able to experience these recent encouragements in physical gains. Thanks again to all of you for your continued support.